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4. PharmaLedger’s Personalised Medicine Use Case

Personalised Medicine Use Case | Watch PharmaLedger’s Use Case presentation and topic-specific Q&A – Join us in our Trust-Centric Healthcare Journey.

At the beginning of 2021, PharmaLedger hosted the second public Open Webinar “A Trust-Centric Healthcare Journey Part II” introducing the clinical trials and health data use cases. It included the challenges, solutions and added value of these use cases, including the latest developments of the project. In case you weren’t able to attend, you can rewatch the entire webinar with the Q&As on our Youtube channel. Each individual use case topic also has its own video from the webinar, with topic-specific questions answered by our presenters at the end. This is the final use case article covered from the second open webinar, with minute-markers to help you to easily navigate the individual use case video.

Also, be sure to rewatch our first open webinar: “A Trust-Centric Healthcare Journey Part I,” which covers our four supply chain use cases.

Personalised Medicine Use Case

Following IoT Medical Devices, the fourth use case is Personalised Medicine. It was presented by its co-leads: Beatriz Merino (UPM) and Christos Kontogiorgis (Democritus University of Thrace). You can rewatch the use case recording below, along with the Q&A related to this topic at the end of the video:

Here is a brief overview of the presentation, with minute markers to help you navigate the video recording.

Current State (0:24)

Today, patients do not have control of their health data, especially when it comes to acces to their health records. If one person moves from one country to the next, usually a printed out paper can be the only proof of past health data. PharmaLedger’s Personalised Medicine use case aims to establish a real-world data space containing patients’ health data and based on prediction models to promote personalised care provision to each individual patient. This would also help to find the best treatment for patients and strengthen empowerment over health data in a more trusted environment, where data is shared for research purposes.

Overall Objectives (1:38)

PharmaLedger’s Personalised Medicine use case aims to strengthen trust in an environment that would help support patient-centric solutions for a value-based health delivery in clinical practice and the generation of Real World Evidence (RWE) for research purposes. This would all be applied to improve diagnosis, prevention and personalized treatment of patients.

Objectives:

  • Introduce new civil rights for patient ownership and right of portability.
  • Use of integrated health data, compliant with data privacy regulations, for research purposes to generate RWE.
  • Implement dynamic permission for use in the platform.
  • Leverage blockchain in combination with Machine Learning and Artificial Intelligence for the creation of algorithms that can assist in improving healthcare provision.

Future State (3:46)

When blockchain allows access to real-world data and all the necessary information, PharmaLedger can start working on the main problem. Data would be collected from hospitals, pharmacies, IoT devices or even optometrists while still granting patient rights. These rights include freedom to save, share and access health data, while also knowing how and when the data is being used. This use case also benefits healthcare professionals, who can make better patient diagnosis and make personalised patient treatments based on patients’ health data, and researchers, who will use the gathered health data and through data analysis methods, such as artificial intelligence or multivariate regression, they will use prediction models to find the best possible treatments.

Why Blockchain? (5:36)

There are four main reasons why blockchain technology can help progress this use case. Blockchain can provide:

  • Transparency – Grants complete overview over personal data 
  • Security – Allows data privacy and security through blockchain, de-identification
  • Trust – Healthcare provision is improved by better clinical decisions, making value-based healthcare more achievable
  • Interoperability – Improves the ability to connect data and reduces the delay time from provision of RWD

Stakeholder Value Proposition (6:54)

There is tremendous value provided to the stakeholders affected by the Personalised Medicine use case. You can read about the benefit this use case can bring to patients, data providers, physicians/researchers and others below.

Poll Results (9:06)

Do you think this is a solution that your company would adopt in the near future?

  • Yes in 3-5 years (45%)
  • Yes in 1-3 years (26%)
  • Yes in 7 or more years (13%)
  • Yes in 5-7 years (10%)
  • No they won’t (6%)

Share one word or phrase that best represents what you believe is the biggest challenge in delivering Personalised Medicine.

Q&A (10:21)

  • Personalised medicine: How are you addressing a secure data ecosystem? Specific technologies for the different types of data providers e.g. labs, pharmacies? (10:32)
  • I do not understand how blockchain is used in the IoT and personalised medicine use cases. How are you using blockchain? (11:40)
  • Blockchain has been used without specificity. Which ‘blockchain’ platform? And how do you intend to scale the voluminous data processing and use? (14:52) 
  • Who/which suppliers would make these blockchains a reality? This is costly work and there are no off-the-shelf solutions (17:33) 
  • Can you please describe the process for achieving agreement on the data governance by all consortium for all/any of these studies? (18:37)
  • How to join PharmaLedger ? We have developed a scalable use case that fits 100% (20:28)
  • Who will manage these Blockchain platform? (21:38)
  • When could patients expect solutions to be available? (22:22)
  • Given that there are other similar solutions in development, how will you build the critical mass to ensure yours is successful? (23:52)
  • Will Big Pharma own these solutions? (24:55)
  • How many ledgers and nodes do you have on a possible chain code? (25:36)

You can be sure to read about all of our use cases, download the presentations or find the links to our Youtube recordings by visiting our Resources & Publications page. Here you will also find useful information, such as the official PharmaLedger presentation and past event recordings that we have attended. 


PharmaLedger has eight use cases in total covering supply chains, clinical trials and health data. PharmaLedger is a three-year project sponsored by the Innovative Medicines Initiative (IMI) and European Federation of Pharmaceutical Industries and Associations (efpia) that brings together a consortium made up of 29 partners who are working together to build a trusted platform using blockchain technology and in addition create many healthcare applications. 

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